Our Sweet "Heart": In Surgery

Tuesday, November 10, 2009

In Surgery

Maddox is in surgery. We should be updated about every hour. As of the last update, Maddox was doing fine, they had opened his chest and he was hooked up to the bypass machine. Now the work begins. Please keep our sweet baby boy and the doctors in your prayers.

- Posted using BlogPress from my iPhone

6 comments:

thepainterfamilyNovember 10, 2009 at 9:05 AM
woke up with a prayer for your family...of course we will keep praying today for sweet Maddox. i'm so glad jeff is there with you!
xoxo
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Jake and RachelleNovember 10, 2009 at 9:24 AM
We are happy to hear Jeff is with you now. We will be thinking and praying for you all day today.
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Obe and Melissa SchroederNovember 10, 2009 at 10:11 AM
You guys have come so far...Oh Jesus, continue to hold Maddox and his family close!! With tears of joyful expectation we are praying and standing with you all the way. Love, grace and peace to you today.

Melissa & Obe
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AllisonNovember 10, 2009 at 10:11 AM
I am hoping you have an update by now! Surgery days can seem like they pass in slow motion. Be strong Mr. Maddox!
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Latter-day GuyNovember 10, 2009 at 11:28 AM
Praying and hoping...
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The Polson FamilyNovember 10, 2009 at 11:51 AM
Keeping you in our prayers!!!
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Maddox Revere Dixon

Welcome to our story of modern day miracles. We have seen first hand the wonders of our Heavenly Father and have been joined with people all over in earnest prayer for a baby boy... our Miracle Maddox.

Maddox was diagnosed prenatally with Aortic Stenosis and Mitral Regurgitation. We found out at 27 weeks gestational age that he had a congenital heart defect. By 29 weeks he was in heart failure and had developed hydrops(fluid under the skin, in his abdomen, and around his heart). The plan was to deliver him at 30 weeks via c-section and after birth attempt to get him stable enough to try to open up his aortic valve. We were also given the option of doing nothing and delivering vaginally once he had passed away, which they thought would be soon. The doctors gave him a less than 1% chance of survival if we tried to intervene. We started planning his funeral. The week we were scheduled to have the c-section we were given the option of flying out to Boston to do a fetal intervention where they would essentially operate on Maddox in the womb. The doctors in Boston weren't even sure that Maddox would be alive once we got off the plane. Two days later we had the fetal intervention where they ballooned open the aortic valve, put a stent in the atrial septum as well as a hole above the stent, and removed some of the fluid in Maddox's belly. Maddox was the 9th baby with his unique heart condition to have undergone this type of intervention. It was successful, and Maddox was delivered at 37 weeks in Boston, where he underwent open heart surgery at 3 weeks of age. At two months of age Maddox came home to Texas. We are now trying to adjust to the new normal: multiple weekly doctors' visits, g-tube feeds, medications administered throughout the day, insurance claims, and including our three other children in the care of their amazing little brother. What an adventure. More surgery is in the Mad-man's future, but he has a future, and for that we will be forever grateful.