Our Sweet "Heart": Two Months

Tuesday, December 22, 2009

Two Months

Maddox turned two months old yesterday and today took his first ride in a car and an airplane to celebrate!!

Aside from having to be patted down by security, nervously getting his first round of meds by Mom and Dad without hospital personnel supervision, and having several poopy diapers changed on Mom's lap in front of strangers, Maddox enjoyed his first morning out of the hospital.

We are now officially in Texas!!!

We made it!!!

- Posted using BlogPress from my iPhone

12 comments:

McGrathsDecember 22, 2009 at 9:26 AM
SO exciting!
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AllisonDecember 22, 2009 at 10:16 AM
Hooray!!! Congrats on making it over the first major hump!! Home for Christmas is probably the most wonderful gift for your whole family.
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Erin SDecember 22, 2009 at 10:26 AM
Yay! So glad you are home!! My heart is just bursting with happiness that Maddox is home with you and you can celebrate Christmas together as a family!
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HeatherDecember 22, 2009 at 11:44 AM
I am so excited for you guys. What a great day for you guys!! Together for Christmas, an answer to many. many prayers.
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SherwoodsDecember 22, 2009 at 3:04 PM
YAY! I am so happy for you guys. I am so happy that he is here with you and especially home with you guys for Christmas. I bet everyone is pretty darn excited Mommy is home too! Merry Christmas!
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Brita DietzelDecember 22, 2009 at 5:31 PM
I have goose bumps! that is wonderful news.
Merry Christmas!
Brita Dietzel
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The LovellsDecember 22, 2009 at 6:30 PM
As Ada would say, Wahoo!!!
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thepainterfamilyDecember 23, 2009 at 6:55 AM
go go go!!

(he looks so sweet and tiny in his seat!)
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StaceyDecember 23, 2009 at 12:57 PM
I'll be home for Christmas has a whole new meaning now! I am so happy Maddox is doing great and that you can be together as a family!!! What an amazing gift this year! Merry Christmas! love and prayers
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AngelaDecember 24, 2009 at 4:37 AM
What a wonderful testimony that God answers prayers. Maddox is one special boy. This will be the best Christmas ever!! We'll keep praying for you...
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colbyanddeniseoveryDecember 25, 2009 at 11:57 PM
I'm so happy you made it home for Christmas! It sounds to me like you're learning how to be a nurse right now. I hope you transition into your new life well and enjoy the holidays with your family.
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Wunda GirlDecember 29, 2009 at 6:57 PM
I can't even STAND how cute he looks in his big-boy car seat! Judging from the length of time from your last post I'm guessing that you are all having a busy and fun-filled Christmas together as a family. I can't wait to hear more :)
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Maddox Revere Dixon

Welcome to our story of modern day miracles. We have seen first hand the wonders of our Heavenly Father and have been joined with people all over in earnest prayer for a baby boy... our Miracle Maddox.

Maddox was diagnosed prenatally with Aortic Stenosis and Mitral Regurgitation. We found out at 27 weeks gestational age that he had a congenital heart defect. By 29 weeks he was in heart failure and had developed hydrops(fluid under the skin, in his abdomen, and around his heart). The plan was to deliver him at 30 weeks via c-section and after birth attempt to get him stable enough to try to open up his aortic valve. We were also given the option of doing nothing and delivering vaginally once he had passed away, which they thought would be soon. The doctors gave him a less than 1% chance of survival if we tried to intervene. We started planning his funeral. The week we were scheduled to have the c-section we were given the option of flying out to Boston to do a fetal intervention where they would essentially operate on Maddox in the womb. The doctors in Boston weren't even sure that Maddox would be alive once we got off the plane. Two days later we had the fetal intervention where they ballooned open the aortic valve, put a stent in the atrial septum as well as a hole above the stent, and removed some of the fluid in Maddox's belly. Maddox was the 9th baby with his unique heart condition to have undergone this type of intervention. It was successful, and Maddox was delivered at 37 weeks in Boston, where he underwent open heart surgery at 3 weeks of age. At two months of age Maddox came home to Texas. We are now trying to adjust to the new normal: multiple weekly doctors' visits, g-tube feeds, medications administered throughout the day, insurance claims, and including our three other children in the care of their amazing little brother. What an adventure. More surgery is in the Mad-man's future, but he has a future, and for that we will be forever grateful.