I'll be home for Christmas...

...as long as the weather cooperates. And it had better.



Maddox is doing well and we have been busy getting everything ready for us to be discharged and catch a flight at 6am Tuesday. Jeff is flying out here tomorrow, we'll finish everything on Monday, and then we're off. I can't wait!!

Maddox is doing well with the G-tube and tolerating the bolus feeds during the day and the continuous feeds through the night.


He eats every three hours and right now he is getting each feed over an hour period. The goal is to decrease that by small increments, to about 30 minutes. Once we get home we will start working more on oral feeding with a bottle and I'll finally be able to try nursing. Nursing at this point will be more for bonding purposes than actual calories, and the milk he gets through the pump and bottle will be heavily fortified breast milk, aka: rocket fuel.

The feeding pump we are taking home, was delivered yesterday, with a month's worth of supplies. Getting used to all the equipment at home and being the ones in charge of everything for Maddox is going to be an adjustment. I hope we figure it all out without making any major mistakes. Maddox is going home on several(7) medications and recieves them at four times during day through his G-tube. There is a lot to remember and I'm trying not to stress too much about all the work this will add to every day, but I'm sure it will take a little bit of getting used to.



We are starting our "new normal" life and I am nervous about all the details, but know that the Lord has been leading and directing us since the beginning of this journey, and that He will continue to do so. He has a reason apparently for wanting Maddox here, so hopefully He'll help Jeff and I to not mess up too terribly as Mad's parents.

We are so thrilled about being able to be together as a family after three months apart. We have much to celebrate. What a wonderful Christmas this will be!








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