Our Sweet "Heart": I GOT NO STRINGS ON ME!!

Wednesday, December 2, 2009

I GOT NO STRINGS ON ME!!

Maddox is off oxygen!!

Look at that handsome man!!! It is amazing to actually get to see his little face.

I'll update all the details soon. I've been busy snuggling.

- Posted using BlogPress from my iPhone

17 comments:

colbyanddeniseoveryDecember 2, 2009 at 4:26 PM
It's great to see Maddox's adorable little face! He's looking so much better. I hope you can take him home for Christmas!
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Obe and Melissa SchroederDecember 2, 2009 at 5:22 PM
Woohoo!!! He's absolutely perfect.
I hope you had a divinely sweet time with your other "babies" over Thanksgiving and got plenty of hugs and kisses from all of them. You all are continually in our prayers...especially Maddox. :)
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HeatherDecember 2, 2009 at 5:46 PM
Yay, for you guys, he is making huge strides, now just temp control and nipple feeding. Maybe he will be home for Christmas. I am so happy for you guys.
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Brita DietzelDecember 2, 2009 at 6:07 PM
Yeah! So, glad to hear the news! Enjoy your snuggling!
Brita
Ellianna Grace Foundation
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Jake and RachelleDecember 2, 2009 at 6:08 PM
Wow, he looks so great! What good news! We hope he makes it home for Christmas.
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LaceyDecember 2, 2009 at 6:10 PM
Yahoo!! So happy he's doing so well. I've been thinking so much of you and your cute family over the past week and how you must have enjoyed your time with the others so much!! But you are probably so relieved to be back with that sweet little baby too!! Luvs!!
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McGrathsDecember 2, 2009 at 6:44 PM
YAY!!!!
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MerynthaDecember 2, 2009 at 7:02 PM
Yeah!!!!! Good job Maddox! Okay, I have tears in my eyes!
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AubreyDecember 2, 2009 at 7:20 PM
Woohoo! That is wonderful news! He is always in our prayers. We are happy to see his progress. He is such a sweet little miracle!
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AllisonDecember 2, 2009 at 8:05 PM
Wow!! Go Maddox! You are cruising! Now just gain some more weight and go meet your siblings!
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Erin SDecember 2, 2009 at 8:46 PM
He's so cute!
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The LovellsDecember 3, 2009 at 7:47 AM
Doing the happy dance!!!
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AmyDecember 3, 2009 at 12:42 PM
Hooray for baby Maddox!!! What a great day!! Enjoy the snuggling!!!
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cheeriBABYDecember 3, 2009 at 2:09 PM
Wow he looks amazing! Way to go Maddox!!!
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chrisnbriDecember 3, 2009 at 7:45 PM
That is great news. He is so cute!
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SherwoodsDecember 4, 2009 at 7:26 AM
Wahoo!!! Hopefully the Christmas thing will work out. I bet it was great to see your other kids again! Go Maddox!
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MariaDecember 4, 2009 at 11:44 AM
I love his cute little nose and I can't even tell that he used to have tubes in it! I'm so excited for you guys and for Maddox!
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Maddox Revere Dixon

Welcome to our story of modern day miracles. We have seen first hand the wonders of our Heavenly Father and have been joined with people all over in earnest prayer for a baby boy... our Miracle Maddox.

Maddox was diagnosed prenatally with Aortic Stenosis and Mitral Regurgitation. We found out at 27 weeks gestational age that he had a congenital heart defect. By 29 weeks he was in heart failure and had developed hydrops(fluid under the skin, in his abdomen, and around his heart). The plan was to deliver him at 30 weeks via c-section and after birth attempt to get him stable enough to try to open up his aortic valve. We were also given the option of doing nothing and delivering vaginally once he had passed away, which they thought would be soon. The doctors gave him a less than 1% chance of survival if we tried to intervene. We started planning his funeral. The week we were scheduled to have the c-section we were given the option of flying out to Boston to do a fetal intervention where they would essentially operate on Maddox in the womb. The doctors in Boston weren't even sure that Maddox would be alive once we got off the plane. Two days later we had the fetal intervention where they ballooned open the aortic valve, put a stent in the atrial septum as well as a hole above the stent, and removed some of the fluid in Maddox's belly. Maddox was the 9th baby with his unique heart condition to have undergone this type of intervention. It was successful, and Maddox was delivered at 37 weeks in Boston, where he underwent open heart surgery at 3 weeks of age. At two months of age Maddox came home to Texas. We are now trying to adjust to the new normal: multiple weekly doctors' visits, g-tube feeds, medications administered throughout the day, insurance claims, and including our three other children in the care of their amazing little brother. What an adventure. More surgery is in the Mad-man's future, but he has a future, and for that we will be forever grateful.