Our Sweet "Heart": Maddox and Mom

Wednesday, May 26, 2010

Maddox and Mom

Sorry about the quality.

7 comments:

Erin SMay 26, 2010 at 8:53 PM
MADDOX IS SO CUTE!!!! Oh my goodness, what a sweet little boy, he seriously is darling! And you are gorgeous - as always! Love that video!
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Zach 'n' JackMay 26, 2010 at 8:58 PM
That was awesome - I couldn't stop smiling, he is such a CUTIE! Oh man, he's adorable, I just want to smooch him! Poor guy, he sounds just like Kyler did when he had RSV, I'm so sorry! He looks so happy though, and he should be with such a great Mommy and Daddy!!!!!! LOVE that little man, and you too!!!!!! xoxo
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thepainterfamilyMay 27, 2010 at 11:39 AM
I agree..I couldn't stop smiling either!!!

What a talker, he's adorable and has mama love written all over him :)
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AshlieMay 27, 2010 at 10:54 PM
Precious! It's got to be moments like those that make it all worth it!
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Brita DietzelMay 28, 2010 at 6:25 AM
So great to see your post! A great video, what a precious little guy. Yes, he sounds like he is staying on his own growth curve. Way to go Maddox, Mom, and Dad. So happy to hear you've had a "party" at your house. I am sure it was much needed. Keep those smiles coming little guy!
Take care,
Brita Dietzel
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Love Sweet LoveMay 28, 2010 at 7:37 PM
I just fell in love with him! Oh my goodness he is the most precious thing in the world! Not every parent would have fought as hard (and continue to fight) for him the way you guys do. He is amazing and so are you! Love him! :)
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NicoleJune 2, 2010 at 9:17 PM
He is such a doll! You are one amazing Mama! He looks like he is doing great! He may not be where other 7mo. are, but who cares, he is obviously progressing! Keep on girl!
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Maddox Revere Dixon

Welcome to our story of modern day miracles. We have seen first hand the wonders of our Heavenly Father and have been joined with people all over in earnest prayer for a baby boy... our Miracle Maddox.

Maddox was diagnosed prenatally with Aortic Stenosis and Mitral Regurgitation. We found out at 27 weeks gestational age that he had a congenital heart defect. By 29 weeks he was in heart failure and had developed hydrops(fluid under the skin, in his abdomen, and around his heart). The plan was to deliver him at 30 weeks via c-section and after birth attempt to get him stable enough to try to open up his aortic valve. We were also given the option of doing nothing and delivering vaginally once he had passed away, which they thought would be soon. The doctors gave him a less than 1% chance of survival if we tried to intervene. We started planning his funeral. The week we were scheduled to have the c-section we were given the option of flying out to Boston to do a fetal intervention where they would essentially operate on Maddox in the womb. The doctors in Boston weren't even sure that Maddox would be alive once we got off the plane. Two days later we had the fetal intervention where they ballooned open the aortic valve, put a stent in the atrial septum as well as a hole above the stent, and removed some of the fluid in Maddox's belly. Maddox was the 9th baby with his unique heart condition to have undergone this type of intervention. It was successful, and Maddox was delivered at 37 weeks in Boston, where he underwent open heart surgery at 3 weeks of age. At two months of age Maddox came home to Texas. We are now trying to adjust to the new normal: multiple weekly doctors' visits, g-tube feeds, medications administered throughout the day, insurance claims, and including our three other children in the care of their amazing little brother. What an adventure. More surgery is in the Mad-man's future, but he has a future, and for that we will be forever grateful.